There are many organisations and charities that aim to help people with CMT, or further research.

The mission of HNF is to increase awareness and accurate diagnosis of CMT and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

CMT France is managed by patients or relatives, aiming to break the isolation by grouping people with CMT, or similar neuropathies, with the goal of providing assistance and support to patients and their families.

The CMT Research Foundation was founded by two patients who are driven to expedite drug delivery to the people who live around the world with CMT, partnering with researchers and industry professionals to achieve this.

Founded by a group of concerned families in 1950, MDA aims to relentlessly pursue the promise to free families from the life-threatening effects of muscular dystrophy and muscle-debilitating diseases, including CMT.

The CMT Romania Association is a young NGO, established in 2018 as a non-heritage, non-governmental, non-political organisation. The Association was founded by and for people suffering from CMT.

The Muscular Dystrophy Association of New Zealand Inc. began in the 1950’s as a support group for families affected by muscular dystrophy and has broadened its scope to include other neuromuscular conditions.

CMTA supports the USA and Canda with the vision of "A World Without CMT", focused on supporting the development of new drugs to treat CMT, improving the quality of life for people with CMT and finding a cure.

CMT Austria focuses on the dissemination of up-to-date information on CMT to sufferers and the public as well as a hub for medical and scientific concerns and the promotion of physiotherapeutic measures.

The CMT Association Australia Inc. (CMTAA) aims to enhance the quality of life for people with CMT by offering assistance to people with the disease, educating and encouraging research and many other goals.

CMT UK is the main UK based charity for CMT that aims to offer assistance and support to people who have CMT, including their carers, educate and support research into the disease, and spread awareness of the condition.

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